So May has arrived, and seeing as though ‘tis the month of lupus and fibromyalgia awareness, and seeing as though I carry the badge of both lupus and fibro warrior (I’ve got the scars to prove it!) I thought I’d share with you some websites and blogs that are doing a whole lot to increase awareness and funds to fight these two big bad diseases.
Don’t know much about lupus or fibromyalgia? Don’t feel too bad… neither is very well understood, or spoken about much. And despite the fact that lupus affects more people every year than AIDS, MS, Sickle Cell Anemia, Cystic Fibrosis and Cerebral Palsy combined, there is actually very little happening in the way of research and new treatment options. In fact, the last major advancement in lupus treatment was about 50 years ago. I will be adding some more info throughout the rest of May on Lupus and Fibromyalgia. For now, here’s a look at some websites that are representing the fight.
Metal Mama Designs on Etsy
So, the problem with most awareness jewelry is that it’s, well, ugly. Sure a purple rubber bracelet is ok and all, but it’s not really a new and inventive concept any more. Nor is it winning any fashion awards. This Etsy site has all kinds of cool handmade spoonie jewelry that’s cute, fresh and downright pretty. Plus the creator will personalize absolutely anything for you. It’s all surprisingly affordable, but for an extra 10% off, use the code AlannaRocks.
The Spoon Theory
Anyone who’s ever tried to describe what it’s like living with an illness or chronic pain has probably struggled with how to tell their friends or family about their daily fight. The spoon theory, written by Lupus fighter Christine Miserandino is hands down the best way I’ve ever found to explain my situation. (It’s also where the term “spoonie” comes from.)
Tune Into Your Autoimmune (Facebook Page)
So I was lucky enough to meet this page’s mod, Lena, via Twitter. She’s a feisty chick who doesn’t let her MS or her fibro stop her. Plus we share an off-beat sense of humor and she bakes zombie cakes. So yea, cruise on by the FB page and say hi to her. And if you know anyone who’s dealing with an autoimmune disease, send them there. Now. Do it, I’ll wait…
Ok, so that’s my starter list for awareness pages that rock. I’ll be adding to it as the month rolls by, so if you happen to know of any pages, blogs, or other sites that are fighting the good fight, let me know! Otherwise, go give these pages some love.